The Comprehensive Cystic Fibrosis Center
The Bristol-Myers Squibb Children’s Hospital CF center is one of only 3 level III CF centers in New Jersey that is accredited by the national Cystic Fibrosis Foundation. The Adult Cystic Fibrosis Center at Rutgers Robert Wood Johnson Medical School and Robert Wood Johnson University Hospital received accreditation by the National CF Foundation in 2007. The Cystic Fibrosis Center offers a comprehensive team approach to the diagnosis, treatment and follow-up of infants, children, adolescents and adults with cystic fibrosis.
Renowned for its focus on clinical research and education, the Comprehensive Cystic Fibrosis Center at The Bristol-Myers Squibb Children’s Hospital has been accredited by the National Cystic Fibrosis Center as one of 117 in the nation, and is ranked among the top 5 US centers for patient outcomes.
Cystic Fibrosis is a chronic, progressive, life-shortening disease, with multiple organ system involvement and requires a coordinated multidisciplinary approach to provide comprehensive care in order to improve outcomes. Due to the chronicity of the disease, there is a tremendous psychosocial and financial burden to the individual, family and society. Numerous studies show that patients who receive care in an accredited Cystic Fibrosis center have better outcomes. Our staff is abreast of all current recommendations set forth by the Cystic Fibrosis Foundation and we update our management protocols to comply with these. Our patient and family centered focus also guides all efforts to provide individual and family support services as needed. Our Family Advisory Council is made up of family members from both the pediatric and adult programs and is a vital part of the center.
Our goal at the Comprehensive Cystic Fibrosis Center is to continue to provide excellent state of the art comprehensive care to all patients so that no patient with cystic fibrosis will have to leave the state to receive appropriate care. With an emphasis on prevention and treatment of complications, the team focuses on treating both the patient and their family throughout the patient’s lifespan, into adulthood.
In order to achieve this goal, it is necessary to have an interdisciplinary team, which includes:
- Nurse Practitioners, Clinic Nurse Coordinators
- Registered Nurses
- Respiratory Therapists
- Social Worker
Our team of specialists also includes gastroenterologists, endocrinologists and infectious disease specialists. Additional expertise from interventional radiologists, physical therapists and pharmacologists is available if needed.
- Consultation with patients who have a positive newborn screen
- Comprehensive ambulatory and inpatient care
- Clinical Management
- Nutritional education and management
- Counseling, case management and advocacy
- Life-long follow up care
- Comprehensive education programs for families, community providers and other health care professionals on the care of CF patients
- Services are provided both to the CF patient and his/her family as needed.
Outpatient Services Provided in Cooperation with BMSCH and RWJUH include:
- Sweat Testing
- Pulmonary Function Testing
- Diagnostic Imaging, including MRI, ultrasound and CT
- Bone Density Scans
- Oral Glucose Tolerance Testing
- Sputum Culture
At approximately 21 years, patients transition to the Cystic Fibrosis Center Adult Program where they can expect the same quality care and compassion which they have grown accustomed to.
Inpatient Care for pediatric and adolescent patients at BMSCH at RWJUH, for adult patients at RWJUH. Faculty and staff in the CF program follow patients both outpatient and inpatient. Center physicians provide 24 hour, 7 day per week care.